Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations
Individuals with adult-onset muscular dystrophies do not die from the disease but have progressive loss of occupational performance (OP) and quality of life. There is no consistent pathway for referral and access to rehab services. OTs are under-used, even though the greatest need is improvement in OP. The lack of guidelines makes outcomes inconsistent. To work, gene therapies require muscle bulk. OTs may train clients in muscle protection to maintain muscle, giving them a chance at a cure.
Primary Author and Speaker: Renuka Roche
Additional Authors and Speakers: Kaitlin Graf
Contributing Authors: Joseph A. Roche