Date Presented 04/6/21
Melorheostosis is a rare skeletal disorder with symptoms that include loss of range of motion and pain. Four measures were used to understand the burden of these symptoms on activity engagement. Results revealed decreased participation in high-demand leisure and lower extremity tasks. There was a correlation between physical and reduced activity fatigue constructs and activity engagement. Further study will provide insight on disease burden across the life cycle within this population.
Primary Author and Speaker: Kathleen Farrell
Additional Authors and Speakers: Danielle Cawley, Rebecca Irwin, Paige Pachuilo, and Kaitlin Wheeler