Date Presented 03/28/20

Individuals with adult-onset muscular dystrophies do not die from the disease but have progressive loss of occupational performance (OP) and quality of life. There is no consistent pathway for referral and access to rehab services. OTs are underutilized, even though the greatest need is improvement in OP. The lack of guidelines makes outcomes inconsistent. To work, gene therapies require muscle bulk. OTs may train clients in “muscle protection ” to maintain muscle, giving them a chance at a cure.

Primary Author and Speaker: Kaitlin Graf

Additional Authors and Speakers: Renuka Roche

Contributing Authors: Joseph Roche

AOTA Taxonomy:
health services research
Copyright © 2020 by the American Occupational Therapy Association, Inc.
2020
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