Date Presented 04/06/19
Most adults with autism spectrum disorder (ASD) need continued support to live in the community, yet little is known about the roles of unpaid caregivers. Caregivers of 31 adults with ASD were interviewed. Caregiver roles included 1) meeting and managing daily needs; 2) obtaining services and supports; and 3) providing support when needed. The results, which have policy and service implications for OT, highlight the multiple caregiving roles these aging caregivers enact.
Primary Author and Speaker: Nancy Bagatell