Date Presented 04/04/19

This research study sought to understand parent perspectives on their child’s long-term therapy needs. This study utilized participatory action research (PAR). A shared decision-making tool was developed and tested as a method for enhancing collaborative conversations between the parent and therapist about a long-term therapy plan. Use of PAR was effective in allowing parents and therapists to cocreate a change regarding long-term therapy planning for children with chronic conditions.

Primary Author and Speaker: Victoria McQuiddy

Contributing Authors: Kristin Winston, Sonia Kay, Terrianne Jones

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