Date Presented 4/1/2017
This qualitative study explored patient perspectives of quality of life and occupations of people with medullary sponge kidney (MSK). Analysis of open-ended surveys from Facebook support group members revealed that people with MSK, a chronic condition, define QOL as participation in valued occupations.
Primary Author and Speaker: Jessica Leer
Contributing Authors: Jeremy Klimek, Olivia Ehrlich, Barbara Kornblau, Debora Oliveira